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Diabetically Speaking

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May 2013

To The Moon and Back

It’s the 4th Annual Diabetes Blog Week! If you want to participate, or if you want to see what other diabetes bloggers have to say about the daily topics over the next few days, head over to Karen’s blog at Bitter~Sweet and jump in.

Diabetes Blog Week Banner 2013

Today’s blog prompt comes from Briley over at inDpendence.

Recently various petitions have been circulating the Diabetes Online Community, so today let’s pretend to write our own. Tell us who you would write the petition to – a person, an organization, even an object (animate or inanimate) – get creative!! What are you trying to change and what have you experienced that makes you want this change?


On May 25, 1961, President John F. Kennedy addressed Congress and presented his vision that the United States would put a man on the moon and safely return him to Earth before the end of the decade. Eight years later, with an unprecedented national determination, and financial support from the top levels of our government, the United States did exactly that.

Imagine if our government, our Congressional leaders, and our medical experts today put the same kind of determination into curing Type 1 diabetes that the brilliant minds of yesteryear did in getting a man to the moon and back. I want to see leaders with the gumption to embrace seemingly impossible ideas, like curing diabetes, and support them with the same enthusiasm and determination as the leaders in the 1960’s did to send a man hurdling out of Earth’s atmosphere toward a floating dustball, have him land, and then safely return. I want to see every single level of government, big pharma, and supposed research foundations, along with parents, children, and people just like me with diabetes working together to embrace solutions for ways that curing diabetes can be done, rather than excuses for how difficult it is. I know it’s difficult. I get how complicated diabetes is. I live with it every single day, and I see my friends thrive with this disease, and I see them die with this disease.

If we can imagine in eight short years how to send a human being on a rocket fuel powered missile 238,900 miles through a vacuum to land on a dusty, dark, desolate piece of planet with no life, air, water, food, or electricity, and then have him travel the 238,900 miles back safely, then we should be able to imagine how to cure a disease that we’ve already figured out how to live with for the past 90 years.

Dblog Week 2013 Button

To view other posts on this topic, click here.

Just Ask

It’s the 4th Annual Diabetes Blog Week! If you want to participate, or if you want to see what other diabetes bloggers have to say about the daily topics over the next seven days, head over to Karen’s blog at Bitter~Sweet and jump in.

Diabetes Blog Week Banner 2013

Today’s blog prompt comes from Melissa over at Sweetly Voiced.

Often our health care team only sees us for about 15 minutes several times a year, and they might not have a sense of what our lives are really like. Today, let’s pretend our medical team is reading our blogs. What do you wish they could see about your and/or your loved one’s daily life with diabetes? On the other hand, what do you hope they don’t see?


Unless I’m traveling or just too busy to stop what I’m doing (or in denial…yes, that happens), I see my endocrinologist (endo) and CDE every three months, my ophthalmologist (eye doctor) every year, and my dentist twice a year. That amounts to, at the very least, four hours a year in the office of my healthcare team with my pancreas hanging out, my pupils dilated, or my mouth wide open. Sometimes at the same time.

Considering that there are 8760 hours in a year, I spend about .5% of my year in doctors offices in various compromising positions (not counting labs, time on the phone with insurance, time spent hooking so that I can afford my copays, etc.), which begs the question… How the heck am I still alive?

There are plenty of other doctors that I could spend time with too. Presently on my list of docs to find include a dermatologist, a podiatrist, and a psychologist. That last one will likely make my doctor time (and spend) increase exponentially, but that’s a conversation for another day. When I’m less crazy. Because that happens too.

Bank - Saving Up For Therapy

The thing is, I need all of the services and advice of all of these doctors in order for me to stay at my optimal health status and achieve my health goals. Yet, I struggle. What little bit of time I have with each of these doctors, we don’t have a chance to talk about some of the things that they could really help me with probably better than anyone.

At my endo, we talk about diabetes, pump settings, high and low blood sugar trends, A1C’s, prescriptions, and sometimes even new diabetes research and technology. We don’t talk about my struggle with my weight, and how it affects me both physically and mentally. We don’t talk about my depression, and how sometimes I’m smiling on the outside and absolutely falling apart on the inside, and nobody ever truly knows the extent of it. We don’t talk about stress, and ways to manage being overloaded, and strategies to cut it down so that I don’t have to add hypertension and heart disease to my laundry list of sh–stuff to deal with on a daily basis.

At the eye doctor, we talk about diabetes, A1C’s, and the importance of keeping and EYE on things (see what I did there?) in the back of my eyeballs. We don’t talk about how prescription glasses are expensive, especially when you need multiple pairs (stylish regular glasses, plus sunglasses that make you think you look stylish, plus sport sunglasses for when you play volleyball on the beach with no shirt on all Top Gun style). We don’t talk about how much time I spend staring at a computer screen, and whether or not that is good or bad. We don’t talk about anything to allay my fears and anxiety from potential and, in reality, way over-exaggerated diabetes complications. We don’t even differentiate between Type 1 and Type 2 diabetes, but rather treat it as just this overarching definition of diabetes that sucks and makes you go blind, your feet fall off, and your wenis not work properly. And I need my wenis to continue to work properly dangit! (I don’t even know how I got from eyeballs to wenis, but I’m mildly impressed and entertained with myself right now.)

I want my healthcare team to know that, just because it isn’t their area of expertise, all of these various other things in Martin World impact me, and are related in some way, and have the potential to impact my health in both positive and negative ways. Because I’m stressed out that my BG’s are running higher than normal may mean that I don’t check my BG as often because I don’t want to deal with the stress that I feel when I see that high number on my meter. So then I go get something awful to eat to feed the stress with, and then my pants start fitting a little tighter, and I feel like I’m the size of a whale and the idea of an 19th century style corset sounds like a pretty great idea if it will make my pants fit better. Then my pants get too tight and the pressure makes my eyeballs fall out and my teeth point forward.

What I also want my healthcare team to know is that I have absolutely no clue how to bring these things up and talk about them in the time limit and in a way that makes sense to them before they have to run off and see the next patient. I’m doing good to remember to even show up for the appointment most days. If it’s not on my Outlook calendar with an alarm, don’t expect me to be there. If there was one thing I wish they would all ask, it might be, “So all of these numbers aside, how are YOU doing? Feeling okay? Any particular issue not related to insulin, BG test strips, and pump supplies that I can help with?”

Just ask. The answer might be no most of the time. But sometimes it might be yes. And that’s when it is most important that you asked, and that you are there to listen.

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To view other posts on this topic, click here.

32 Things

Today is an important day in Martin World. A day that I look back and reflect on some of my accomplishments.

1. I passed Chemistry in high school. It was the hardest class for me. Tutoring helped. The tutor had a cute daughter. Those last two statements are mostly unrelated.

2. I graduated. Four times. Because once just wasn’t enough. (HS, AA, BS, MS…in case you were wondering.)

3. I was a DJ. On a Christian music radio station. Yeah, I don’t believe that either. But it’s true.

4. I found love. And lost it. And found it. And lost it. And found it again. I’m like a country song.

5. I’ve changed the world. Sort of. I stepped on an ant hill. “World” is relative.

6. I’ve been a President. It’s a lot harder than it looks.

7. I rode my bicycle over 100 miles in one day. Most people have enough sense not to do that.

8. I had dinner with Olivia Wilde. Kind of. She was two tables away from me. I’m still counting it. Can we be friends?

9. I was fired once. They called it a “lay off” because of the recession. Lipstick on a pig.

10. I’ve worked in two libraries so far in my career. I’ve been the token male in both. I’m like a trophy librarian.

11. I’ve been an Apple, an Android, and a PC. I prefer being an Apple.

12. I was voted Most Intelligent in middle school. It was nerdy at the time. Now it’s dead sexy.

13. I grew up on a farm. I delivered a calf. I about had a cow.

14. I had a dog named BJ when I was a kid. I lived on Fifth Street. I’m usually on top of that “What would be your name?” game.

15. I write with Sharpies. People with dry erase boards hate me when I get excited about flowcharts and to-do lists.

16. I worked in a 1-hour photo lab. I got paid to stick my nose in everybody else’s business.

17. I am Jack’s complete lack of surprise. According to the first rule, I can’t talk about this. I do love the movie though.

18. I wear a Mickey Mouse watch. It reminds me that great things start with small ideas.

19. I have jumped out of a perfectly good airplane.

20. I have a tattoo. I’d like to get another one. I just don’t know what yet.

21. I love video games. They are a way that I escape and decompress. I also want my own personal Navi, like in Zelda.

Navi_Hey_Listen

22. I always have more to do than I have time for. In related news, sleep is a nuisance.

23. I like to explore a new city on foot or bike. You see things that you didn’t realize were there. Like celebrities.

24. I love New York, DC, and Seattle.

25. I’ve tried escargot (snails). It’s not my thing.

26. I speak a little bit of Russian. I would like to learn how to speak Spanish. English would also be helpful, some days.

27. I can’t speak in coherent sentences before coffee in the morning.

28. I’ve read every book by Terry Goodkind, Barbara Kingsolver, Tobias Buckell, and John Steinbeck.

29. I have pets that are some of my favorite people. Two dogs and a cat. All spoiled rotten.

30. I have moved nine times in my life so far. Books are very heavy. Save your back, buy an e-reader. And get a library card for Pete’s sake.

31. I gravitate toward leadership roles. Which probably explains why my to-do list is so long.

32. Today is my 32nd diaversary. 32 years with Type 1 Diabetes. Making it this long is nothing short of a big deal. But, as you can see, there is a lot more to me than just diabetes.

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